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Average Customer Rating: 
(5 reviews)
Editorial Review: This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to interstitial cystitis (also Hunner's Patch; Hunner's Ulcer; Painful bladder syndrome; Pelvic Pain Syndrome; Trigonitis; Urethral Syndrome), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on interstitial cystitis. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook...
Customer Reviews:
1 of 7 found this review helpful:
Great Guide, 2003-05-07
I have found this very helpful while searching for more info on my disease. I would stongly recommend this, especially to those, who are new to the disease.
0 of 4 found this review helpful:
Great guide, 2003-05-07
I have found this to be a great guide while searching for more info on my disease. I would recommend this strongly to especially those, who are new to the disease.
3 of 9 found this review helpful:
The Book's Audience, 2003-01-09
Designed for people who are new to interstitial cystitis, this sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it is designed for patients who are less familiar or are new to the Internet as a medical research tool. It tells the reader where and how to look for information covering virtually all topics related to interstitial cystitis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are compiled and reproduced to give you some of the latest official information available to date on interstitial cystitis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Interstitial Cystitis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Interstitial Cystitis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Interstitial Cystitis; Chapter 5. Patents on Interstitial Cystitis; Chapter 6. Books on Interstitial Cystitis; Chapter 7. Multimedia on Interstitial Cystitis; Chapter 8. Periodicals and News on Interstitial Cystitis; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Interstitial Cystitis; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; INTERSTITIAL CYSTITIS GLOSSARY; INDEX. Related topics include: Hunner's Patch, Hunner's Ulcer, Painful bladder syndrome, Pelvic Pain Syndrome, Trigonitis, Urethral Syndrome, Urgency frequency syndrome.
0 of 4 found this review helpful:
Great Reference, 2002-12-04
Being new to the disease I found this to be a time-saving directory of information and academic sources.
19 of 21 found this review helpful:
A Disappointment, 2002-11-22
I was very disappointed when I reviewed this book. It was almost as if the author(s) went to a search engine, and the NIH's Medline, and the National Library of Medicine (PubMed) did a search for IC then made a book out of the results. Of course, the problem with this is that that many of these listings will become (if they aren't already) outdated and "old" information. The book was apparently not reviewed by someone who has knowledge of the IC community, as it listed old and outdated addresses as well.In conclusion: In my opinion, just a few hours on the web "today" will yield more current and useful information than that provided by this book. For those seeking information on IC, I suggest a search on "google.com" instead.
Jill O.
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